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My diagnosis from Tuesdays appt

14 May 2009 4 Comments

Okay, well it went well.  I got a little irked when the nurse asked me what PMDD stood for.  I took a deep breath and answered.

Why was I annoyed?
I had already made sure, prior to making the appt, that they dealt with PMDD issues.

Like I said, I took a deep breath and figured, this is the nurse, I have no idea how long she has worked here, etc…  Then the great question came out… What are your symptoms?

I chuckled because first of all I had already filled out everything via their online portal and she had already mentioned, you said on the online portal…. SO… I knew she had the info!  Again, I smiled and said, “Would you like the whole list, or do you want to just write down emotional, mental, physical ailments that keep me from living my life the way a 35 yr old Woman should be living.”

She said, “I need to write down the symptoms.”  I guess she meant, type or check them off on her little laptop she was carrying around.  I gave her a few and left it at that.

I was pleased, the doctor did know a lot, he was also not pushy or counter-talking me.  He asked me, after I would tell him my thoughts from my research and living, that’s true and then there is…

So, he had info to add to my info, I was pleased.  I haven’t had my yearly, I’m a few months behind from all our moving, so he went ahead and did that too.

Unfortunately, more was there than just the PMDD, but all is still well.  It looks as though I have a polyp that needs to be removed and he believes that I have adenomyosis (internal endometriosis) and menorrhagia (abnormal heavy bleeding and prolonged menstrual periods at regular intervals)— What the Hell! I thought this was just my period worse than everyones!  Anyway, causes may be due to abnormal clotting, disruption of normal hormone regulation of periods (Yep! that’s a given :), or disorders of the endometrial lining of the uterus (adenomyosis)

It all made sense.  I have said here that the past few months, even with my meds, have become quite unbearable.  Emotionally and physically.  Apparently, I was right on with paying attention to my body (that pleased me).  It really goes along with why I have this site.

I go back on Monday, have the polyp removed (in the office, just take some Tylenol he said) and have a sonogram of my ovaries and uterus to see about the adenomyosis and possible endometriosis.  Apparently, alot of Women that have Adeno, usually have the beginning of Endo too.

So… Come Monday I will have more updates.  It did confirm to me that the hysterectomy (because of my situation) is most likely my only step left.  All other options have been exhausted as I have said before.  Also, the ONLY cure for Adenomyosis is a hysterectomy.  So, again after finding that as well, it shows that I am reading my body correctly and making some good decisions, based on my situation.

That alone is a positive.

I will keep you guys updated!  Thanks for all the good lucks!

Stef

4 Comments, Read or Join In »

  • Sarah said:

    I encourage you to look into other advice about removing your female parts that just an MD, they are very into taking stuff out and don’t know much about healing naturally the stuff that is already there or just leaving it be. Maybe this is right for you I just want to add this perspective, get a second opinion… and thx for the site dedicated to PMDD.

    Reply

    admin Reply:

    Thanks Sarah,
    I am definitely going to look into everything first. I don’t want to trade one set of problems for another.
    I had my appt today, including a sonogram done and found that I have a cyst on my right ovary that is rather large. I am going back next Thur to discuss the sono pics and all the info we have already discussed at my previous appt.

    I will keep you guys updated and thanks for the info- That’s what makes this site helpful.

    Reply

  • Katie said:

    I hope you are doing well, I have had PMDD since 1993 before they even knew what it was, I knew something was wrong. My doctors appts were always like yours or much worse. No treatments have helped, im 32 and fearing a hysterectomy. I also had painful heavy periods. Last year I was diagnosed with thrombophilia a genectic blood clotting disorder (blood is to thick)they are treating me with 81mg aspirin and prescription vitamin B,it has seemed to help with the heavyness of the period, but the PMDD gets worse every month. I dont know if this will help.

    Reply

    admin Reply:

    Thanks Katie,
    I am not doing so hot right now, but I am hanging in there.

    I really hate for you to be so young and even have to think about a hysterectomy. It does suck that nothing is working for you. Does your blood clotting disorder prevent you from being able to try certain things for your PMDD?

    I was told by this last doctor that some Women are allergic to the flow of their cycle. The actual shedding is what they are allergic too, of course with you the heavyness is getting better, but the PMDD is getting worse.

    I wish I had more answers for you, of course I don’t have much more than you do, if any.

    I just hope to be a listening ear for you, and a good support system.

    Reply

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