Redefining Life: Life w/ PMDD

I’m back- getting back on track

As most of you have read my son started running a 104.6 fever and his lips and body turned a purply color, we called the ambulance and they took us to the hospital. He was vomiting and had only had a fever of 102+ for 2 days before we called the ambulance. We called ask-a-nurse late the night before he went by ambulance, they thought it was more of a virus.

His leg all of a sudden started hurting so bad, he couldn’t even walk- another reason we decided on the ambulance rather than just driving him, plus we didn’t want to get there and have to sit in the waiting room with him being as bad as he was- thank goodness we didn’t wait.

They ran all his tests- no mono, no flu, no nothing. Then they did a CT scan on his leg and found something to be there. They transferred us by ambulance to another hospital where an incredible pediatric orthopedic surgeon waited for us and ordered an MRI to get better pics of the leg. He had a staph infection in his bone.

We don’t know how, he doesn’t have any open cuts, etc… but they say it could be from a cut or something like that from a long time ago and his body fought it off at the beginning, then he just got sick once it hit his bone. They did surgery a few hours later and drained the infection. Then he got a blood clot and then it got in his blood stream and moved to his lungs. The blood clot is in his major vein in his leg so we had to watch to make sure it didn’t do anything.

Luckily, the blood clot finally started getting smaller, the spots in his lungs are breaking up and not getting worse, his fever finally stayed away the last 3 days and his blood cultures came out negative. We were finally released after 2 wks.

He is at home with a PICC line where we give him antibiotics and his blood thinners. He’s also on other meds and will be starting physical therapy, and home health care comes once a week to take blood and change the dressing. It is nice they come here to do blood work and they take it to the hospital and the hospital faxes the results to his 5 specialists.

It is good to be home, he is doing good, playing computer and doing stuff again which will help with the rest of his clot and lungs, getting rid of the mess in them.

My surgery is temporarily off, but the surgical coordinator has been incredible and has said to let her know when I feel like I can reschedule and she will work with me. With the stress and everything going on, it just wasn’t best for me to keep my appt and then rush back to the hospital for recovery.

I will keep you guys informed on my new surgery date, I am still having the surgery and am still very optimistic about the results.

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